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Ingrid Mulder <[log in to unmask]>
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Ingrid Mulder <[log in to unmask]>
Wed, 24 Dec 2008 00:40:57 +0100
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[Apologies for cross postings. Please, re-distribute]

Call for participation -- Designing with Care (DwC'09) workshop
March 31st, in conjunction with PervasiveHealth09, London UK, April 1-3,

Designing with Care
In establishing humane care next to understanding the context of use,
understanding human values is a key factor towards creating acceptable
pervasive healthcare applications. In order to avoid dehumanizing and
stigmatizing the user, we plea to involving humans and incorporate their
values in the design approach. This is especially true for designing
pervasive healthcare applications, where the 'complexity of users' is
increasingly sensitive. By considering human values in the design process,
designers and developers can create pervasive health applications that
better fit the end user needs and desires. The resistance to new technology
can also be reduced by incorporating values into design.

About the topic
Healthcare technologies are increasingly pervasive, moving into the working
environment of health care professionals and homes of the patients,
presenting new challenges to design and evaluation of pervasive healthcare
applications. The complexity and scope of pervasive health care has brought
together practitioners from a wide range of disciplines. Experience has
shown that design and evaluation of pervasive systems is extremely
difficult. Approaches tend to be subjective, piecemeal or both. Individual
approaches to evaluation risk being incomplete and comparisons between
systems can be difficult (Neely et al., 2008; Siek et al., in press).
Participation of end users in the design process tends to be limited, and
evaluation tends to be subjective, limited in time and in an unrealistic
setting, resulting in findings with limited validity.

Although these challenges are faced when designing pervasive systems in
general, designing and evaluating pervasive health applications face
additional challenges; these applications are increasingly perceived as
useful for a diverse group of 'non typical' users including older and
disabled people. Whereas user centered design strives to involve the direct
(end) users in the design trajectory, user centered design for healthcare
refers to these 'non-typical' users, who have diverse backgrounds, skills,
living conditions, abilities, needs and desires and who can be hard to
reach. Although the vital importance of ensuring that the healthcare
technology is both usable, appropriate and acceptable for these groups has
been widely researched, recognition of incorporating human values in the
design is only now beginning. For example, regarding the adoption of
innovative technology in the health care domain, there is hardly any
attention paid to ethical issues in healthcare technology projects other
than discussing these issues while implementing a new technology, for
instance in informing the health care professionals shortly before
introducing a new system (Schikhof & Mulder, 2008; Vastenburg et al.,

About the workshop
The workshop aims to provide insights that contribute to the design
methodology of pervasive healthcare technology in terms of creating a
consistent set of methods and guidelines for design and evaluation of
pervasive health applications. The focus will be on human values in relation
to pervasive technology. We particularly invite people to share their
experiences in dealing with incorporating values into the design of
pervasive health systems and / or best practices understanding the sensitive
issues facing when designing for the health domain.

The objective of this workshop is to bring together researchers, designers
and practitioners  with a clear interest in the areas of human centered
design and evaluation and pervasive technologies for healthcare  that
contribute to a vivid discussion leading to improved methods and tools that
cope with human values in designing pervasive health applications with care.

Topics addressed in the workshop include, but are not limited to:
-  User involvement when end users are hard to reach
-  Evaluation of pervasive healthcare applications
-  Design methods and techniques
-  Value-sensitive design
-  Technology acceptance
-  Ethical issues
-  Diagnosis and monitoring practices of (chronic) patients

Workshop format
The one-day workshop will be organized around a series of best practices and
cases, through which we will discuss how to conduct evaluations which allow
assessment of human values and ethical issues in its context of use. We will
use the first session to introduce participants (via brief talks of about 5
minutes), which will be followed by an initial round of discussion. One
outcome of this discussion will be the (sub-) set of questions to be
discussed more thoroughly in small groups.

During the second session, we will break up into groups of about 5 members
each to discuss the previously identified questions in-detail and aim to get
more insight in 1) incorporating values in the human centered design
approach and 2) applying methods and tools for understanding the context.
When necessary, selected cases will be used to stimulate the discussion.

In the third session the individual groups will report on their discussions
and give feedback on the selected cases. The workshop will conclude with a
plenary discussion of the issues raised and points made. We will decide how
to proceed with the topic in general, aiming to establish a research agenda.
We aim to limit the workshop size to about 15 participants.

Expected outcome
The first outcome of this workshop is community building for researchers and
practitioners interested in involving users and incorporating human values
in the design and evaluation of pervasive healthcare applications. Second, a
research agenda including research questions, evolving directions and
relevant methods and techniques to designing and evaluating pervasive
healthcare application with care, will be established. Workshop participants
are encouraged to extend their position papers and contribute to a special
issue 'designing with care'. We are planning to have this special issue
published with Springer Journal Ethics and Information Technology. This will
be the main publication reflecting the discussions of this workshop,
although the call will be open to others.

Designers and practitioners who want to contribute to a vivid discussion
leading to improved methods and tools to involve users and incorporate human
values in the design and evaluation of pervasive health applications are
invited to submit their well-informed position statements.

Submissions should consist of three parts:
1. A 2-page position paper discussing a related topic, including a case
2. A short research statement of the submitting author describing their
particular interests and previous research relating to the workshop topic
(up to half a page)
3. A particular issue/question that should be discussed at the workshop (up
to half a page)

Submissions should be e-mailed as one PDF attachment before February 10 to
[log in to unmask] Participants will be selected on scientific relevance and
societal values. In this, the organizers are searching for position papers
that can stimulate discussion. One author of each accepted paper needs to
register for the workshop and for at least one day of the conference.

Important deadlines
Paper submission: February 10, 2009
Notification to authors: February 20, 2009
Camera ready: February 27, 2009
Workshop date: March 31, 2009

Workshop chairs
Ingrid Mulder, Rotterdam University, [log in to unmask]
Yvonne Schikhof, [log in to unmask]
Martijn Vastenburg, Delft University of Technology,
[log in to unmask]

Program Committee
Jeroen van den Hoven, Delft University of Technology (Program Chair)
Ann Ackaert, University of Gent
Anneloes Cordia, Rotterdam University
Alois Ferscha, University of Linz
Vlado Glavinic, University of Zagreb
Marleen Goumans, Rotterdam University
Anne Gross, Fraunhofer Institute
Andreas Hochgatterer, Austrian Research Centers
David Keyson, Delft University of Technology
Andreas Komninos, Glasgow Caledonian University
Helianthe Kort, Utrecht University of Applied Science
Christian Kray, University of Newcastle
Julie Maitland, University of Glasgow
Andrew Monk, University of York
Birgit Morlion, IBBT, Belgium
Katie Siek, University of Colorado, Boulder
Graeme Stevenson, University College Dublin
Maarten Wegdam, Telematica Instituut & Twente University

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