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Nervo Verdezoto <[log in to unmask]>
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Nervo Verdezoto <[log in to unmask]>
Sun, 10 Feb 2019 11:06:13 +0000
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Unpacking the Infrastructuring Work of Patients and Caregivers around the
World at CHI 2019, Glasgow, UK, May 4th 2019

* Important Dates*
* *February 22, 2019*: *Extended deadline* for case descriptions
* March 1, 2019: Notifications and registration instructions sent to authors
* May 4, 2019 14:30—20:30 pm: Workshop day

* Call for Papers*
Many healthcare systems around the world are noted as fragmented, complex
and low-quality, leaving patients and caregivers with no choice but to
engage in “infrastructuring work” to make the systems function for them.
However, the work patients do to construct their functioning health service
systems often remain invisible, with very little resources and technologies
available to assist them. This workshop aims to bring together researchers,
health practitioners, and patients and caregivers to examine, discuss, and
brainstorm ways to re-envision our healthcare service systems from the
patients and caregivers’ perspectives, to unpack the types of work that
they do to reconfigure, adapt and reconstruct the healthcare
infrastructure, and to brainstorm possible design ideas that can provide
better infrastructuring assistance to patients and caregivers.

We invite researchers, health practitioners, and patients to examine,
discuss, and brainstorm ways to re-envision our healthcare service systems
from the patients and caregivers’ perspectives, and to unpack the types of
work that they do to reconfigure, reconstruct and adapt the healthcare

Specifically, we have the following goals:
- Identifying different types of work that individuals engage in making the
professional service system functioning
- Sharing experiences, resources and strategies patients and caregivers
develop when encountering complex healthcare services, facing different
regulations, and policies from healthcare services systems from an
international perspective
- Reflecting on the role of materiality and spatiality and how they
influence and transform both individual’s and health professional’s
experiences with care infrastructures
- Leveraging the discussion from the workshop to brainstorm new thoughts
into digital health system design that offers better connection than the
traditional healthcare service infrastructure and to eliminate the burden
individuals face in making the service work
- Providing inspiration from multidisciplinary, cross-geography and
cultural, and trans-national perspectives into the design of new
sociotechnical solutions to support and sustain care infrastructures

To participate, please submit a case description (2-3 pages) to:
[log in to unmask] by February 22, 2019. Each case should cover
the following sections: first, the infrastructure breakdowns and challenges
from the healthcare system being described; second, the work patients and
caregivers do to reconfigure, connect, communicate and reconstruct their
desired healthcare services; third, the role of the care setting in
relation to social and power structures, boundaries, material and spatial
elements, and embodiment experiences; and last, the envisioned
socio-technical solutions to the problem.

Position papers will be reviewed and selected by relevance and likelihood
of stimulating the workshop discussion. Results of submission will be
notified by March 1, 2019. We will select participants with diverse
disciplinary, cultural and geographical backgrounds, and balance the cases
in terms of medical conditions, healthcare systems, and sociotechnical
context. The selected cases will be posted on the workshop website in early
March 2019. At least one author of each accepted paper must register for
the workshop and for at least one day of the conference.

* Contact*
Submissions and questions about the workshop should be sent to:
[log in to unmask]
For more information, please visit the workshop website:

* Workshop Co-organizers*
Yunan Chen, University of California Irvine, USA
Nervo Verdezoto, University of Leicester, UK
Xinning Gui, University of California Irvine, USA
Xiaojuan Ma, Hong Kong University of Science and Technology, China
Claus Bossen, Aarhus University, Denmark
Naveen Bagalkot, Srishti Institute of Art, Design, and Technology, India
Valeria Herskovic, Pontificia Universidad Católica de Chile, Chile
Bernd Ploderer, Queensland University of Technology, Australia

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